Daily Journal – May 12


The last couple of weeks resembles the “Great Science Experiment!”  I originally visited my doctor for a nerve on the right side of my face being sensitive to touch and radiating pain with even the slightest pressure. We had already decided on previous visits that 2017 would be the year to see an orthopedic doctor about the erosive arthritis in my right hand and to see if I could find relief through pain management for my SI injury. This has resulted in me feeling quite overwhelmed. It seems that there is either physical therapy or a doctor appointment every day. Take my advice and do not take a “grocery list” to the doctor! It is not conducive to an introvert personality to have so many appointments in a short time. As you read on, you’ll see how my story reflects my INTJ personality.

For anyone wondering (lol) the MRI did show that I have a brain – and, it’s quite normal! Imagine that! The MRI showed no abnormalities but also no reason for the nerve pain. The nerves are too tiny to be seen on the test. My doctor said it could be something as simple as a kinked nerve and it will straighten itself out – hopefully soon. It’s way past wearing on every other last nerve. Most facial movements cause it to either hurt or send a strange sensation down my face. The nerve originates at the brain and travels through the skull and separates into three nerves, each servicing a third of the face – top, middle, and bottom. It is the upper third that is giving me problems. So, it’s a wait-and-see type of thing. Wait and see doesn’t work well with my personality so it’s a little (lot) trying. I am not the most patient of people.

The back/spine doctor that I had an appointment was nice enough but wanted to give me an injection in SI for the pain. He was explaining how they use an x-ray to insert a tiny needle to inject the medicine into the SI. I will tell you right now that I DO NOT have a poker face. You can read my face as though it had words written across it. He stopped mid-sentence and commented, “that doesn’t appear to be an option?” Dude! You think? Nope, nope, and nope!

For those of you who do not know where the SI is located, I will explain (short explanation). If you look at a skeleton, it is between the hip bones. It separates to allow for the birth of a child. Knowing this information, can you imagine the look that must have crossed my face? My imagination was running wild! You want me to bare my ass (excuse my language) and you want to stick a needle into my SI? Uh…nope, nope, and nope! Now, I have no idea exactly how they do this, but my brain was telling me there was no way that was going to happen! Doc, come down off the ledge and let’s start at the bottom of the ladder!

He was kind when he mentioned that is what they do there (at the hospital). Imagine if you don’t think out the scenarios and just agree to what the doctor tells you. I ask questions and then more questions, and then follow-up with more questions (the personality thing.) He was also kind enough to tell me that it doesn’t always work and some people need a shot every couple of months. What was going through my mind was, you want to stick a needle in me and then it might not even work? Nope, nope, and nope!

I am not one to mask pain. I want to know and understand what is causing it and what can we do about it – sans the needle. I told him that I didn’t know if I should quit walking, go to a gym and work with a trainer, or do physical therapy. His answer was physical therapy and that is where I am with the back problem. I was in physical therapy last summer for four months with a concentration on dry needling, but with no exercising. I decided to try a different place and so far, I am very pleased with the results.

This time, during the evaluation, I let the PT know about my experience last year and what I was looking for – which is pain management and hopefully some healing through exercise and stretching. He listened very intently and answered all of my questions and during our sessions, explains what he is doing and how it affects the SI joint. The last PT I used didn’t like when I asked questions and really didn’t like that I did research when I went home. This PT has been very open and receptive, even giving me things to look up for information. I am finding relief through the exercises and manipulation of the muscle (that did not heal properly from my fall.) He also explained that dry needling is good, but only if followed up with stretching and manipulation once the muscle is relaxed. Information fell into place for me. I have to admit though, the 15 minutes of heat at the end of each session is my favorite!

I know this post is getting rather long, but here’s the story about my appointment with the orthopedic surgeon. You know it’s not good when the doctor looks at you like his last meal! First, I saw the nurse for the usual and when she saw my allergy to iodine, she remarked that might be a problem because the doctor used iodine at the injection site.  “?” It took a moment for my answer, “That won’t be a problem” to register. Geez! Why does everything involve a needle?!

First, he wanted to cut open my fingers and scrape what he referred to as bone spurs on my joints by the fingernails (if it has a name, I don’t know it), then fuse the joints. One-at-a-time. This would involve six surgeries! THEN, there would be a joint replacement of my index finger/thumb on my right hand (the one affected by erosive arthritis). I was in pain just listening to him. Once again, it’s like – come down off the ledge doc. When I burst his bubble, the next suggestion was a shot. Again – masking the pain. Nope, nope, and nope! We settled on physical therapy, which I will not begin until I work on my SI. Too many appointments!

The bottom line of that story is I may eventually have to consider these solutions, but not until I’ve discussed with my oncologist how surgery might affect my blood disorders. Any type of blood loss will affect my red cell count and platelet multiplication in a negative way.

This all happened after I made it to the hospital for the appointment only to have GPS route me out of the parking lot, a half mile down the road, u-turn, back to the parking lot I had just been in, and then tell me I had reached my destination. Say what?!

That concludes my “Lucy” adventures for the last two weeks. Thanks for stopping by!

My Daily Drama – Hospitals and distracted drivers!

English: FIG. 513 – The internal carotid and v...
English: FIG. 513 – The internal carotid and vertebral arteries. Right side. Deutsch: Rechte Arteria carotis (Photo credit: Wikipedia)

I had an appointment with my oncologist yesterday at Ochsner Hospital. If you follow my blog, you already know that I have two rare blood disordersEssential Thrombocythemia and Polycythemia Vera. I have also been diagnosed with a rare form of arthritis – never miss the opportunity to be unique! – erosive arthritis.

Yesterday was my six-month blood work and check up. The drama began with the drive to New Orleans, which is about sixty miles from my house. After having to brake and dodge several vehicles, I seriously began to doubt the sanity of the people on the highway! Seriously! Am I the only one who uses a blinker when changing lanes? What happened to common courtesy? Am I the only one who checks their mirrors before changing lanes – with or without a blinker? And am I the only one who doesn’t tailgate?

I didn’t mention about using the headlights because my lights come on automatically when the vehicle is started – if not, I would put them on. How many times would we have not seen a certain color vehicle had it not been for the headlights?

Common courtesy is gone. We pass accidents on the highway and wonder what happened? Well, I’m sure they weren’t necessarily paying attention! Between talking on the cell phone and rummaging on the floor in the front seat or heaven forbid, the back seat, it’s a wonder the highways do not feature one long string of accidents.

What does it take to make us pay attention? I’m including myself, not because of the cell phone or the rummaging through my purse, just because I find my mind wandering at times or caught up in the music – which is why I travel in silence most of the time. I have a zero attention span and bee-bopping to music on the interstate or in the city is just not what you want me doing.

Hubby does most of our driving, all of it if we are going somewhere together. He is a retired state trooper and goodness knows, he’s logged enough hours behind the wheel to be considered an expert. This means, when I drive I really need to be mindful because I’m used to being the passenger and having the luxury of sightseeing.

Back to my appointment. Everything looks good. My numbers are still high, but in the same range as last visit. The doctor did mention that next year when I turn 59 (did I just admit that?) he will begin doing ultrasounds on my arteries and at age 60, stress tests as well as ultrasounds. My blood disorders are sometimes treated the same way cardiovascular disease is treated and as we age, if we have the disease our arteries begin to narrow and this creates additional problems with the disorders. I already have too many blood platelets and red blood cells and if they have to begin pushing and shoving their way through my arteries, let’s just say it would seriously complicate things.

When I reach age 60, the doctor said we will look at all the tests and make an educated decision on whether we start chemotherapy. Chemotherapy to treat the blood disorders means doing chemo for the rest of my life so it is a huge decision.

So, unless there is an unexpected spike in my numbers, I should be good for another two years. That’s good news. I still hate getting stuck with needles.

After the doctor appointment, I set my GPS to find Lumber Liquidators. We are trying to match the wood floor in our boat and we are having a devil of a time! I was following the directions and as we all know, when it doesn’t make sense, we think we know better – even when we haven’t a clue where our destination is! But, I stuck with it and sure enough it directed me exactly where I needed to go. It was a little hole in the wall and I was expecting a big store. For once, I was glad I listened to the GPS.

That’s about all for my drama of yesterday. Hope you had a great day and I’ll meet you right back here tomorrow!

Thursday – Where Truth is the Dare

Question of the Day: Where Truth Is the Dare   [QUES OF THE DAY] [Paperback]

It’s Thursday again – and we all know what that means!

Here is this week’s question.

Truth? or Dare?

What are you hoping for?

(Hoping, not trying to make happen.)

I am hoping for my blood platelet count to stabilize and quit fluctuating and increasing. (I have Essential Thrombocythemia; my blood marrow makes too many platelets.)

(Only God can make that happen.)

Thank you all for participating.

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